Fund-Raising Fotos

(I am a sucker for alliteration, hence the title of this post!)

As most of you know, the Registry as well as the Clinical Research Center both benefit greatly from the fundraisers that members hold on our behalf. Although I try to post as many as I can on the Registry's website, I think they sometimes get lost among all the announcements and pages there. So, I'm dedicating this blog post to the Fantastic Families who Forward Fund-Raising Fotos to me! Enjoy!

These are some photos from the 2007 Family Fun Walk, hosted by the McDivitt Family...



If only it were possible to bottle the energy this little girl has!!!!!


Here's a few great shots from the Botello's golf fundraiser...


The Furgiueles' fundraiser wasn't quite so summery, but it looks like a ton of fun anyway! They hosted a skating party, complete with a hockey team!


I hope that you enjoyed these photos as much as I enjoyed posting them. Oh, and if you ever have a chromosome 18-themed event, please send photos to seboldc@uthscsa.edu!

Great Things in San Antonio

Recently, Jannine Cody and Gloria Matthews, Administrator for the Chromosome 18 Clinical Research Center, visited Morgan's Wonderland. Here's a photo of the two of them with Gordon Hartman, creator of this "Ultra Accessible Family Fun Park".

(Okay, so it isn't really a photo. The camera was accidentally set to video instead of photo. Happens to the best of us!)

Morgan's Wonderland is a great new park in San Antonio, built specifically for people with special needs! It is simply fantastic. You can read more about it here.

The grand opening will be on April 10th. If you are near San Antonio and are interested in visiting the park, keep in mind that reservations are required!

We Want To Hear From You!!

Recently, a Registry member forwarded a fantastic website our way that I wanted to share with everyone. It is called "The Complete Caregiver". It is a great website that has advice and resources for parents that are taking care of kids with special needs (both medical and developmental). Take a look!

Last week,another Registry member forwarded an article he had found during a routine literature search that I hadn't yet seen and was relevant to a project I've been working on.

My point in writing this post is to encourage everyone, if you've found something new that you think might be useful to us or to other families, please forward them to me at seboldc@uthscsa.edu! Or you can send it over to Gloria at office@chromosome18.org. Or post a link on the Registry's Facebook page!

Pledge

So, as many of you already know, 2010 marks the 20th anniversary of the Registry. Hard to believe, but true! We’ve been asking people to make pledges involving the number 20. For example, give 20 bookmarks to friends. Invite 20 people to join our Facebook group. Tell 20 people about the Registry. I’ve been impressed with the number of people that have made pledges. And then it struck me…

I haven’t made a pledge yet!!

Luckily, I have all of 2010 to decide what my pledge will be (and then to meet it). So, here’s the question. What should I pledge? I think giving out 20 bookmarks is a good one, especially since I’m in a book club that would no doubt love to have a marker…I could also tell 20 people about the Registry, but that one is almost TOO easy. I just go to a social gathering, and answer the question, “So, what do you do?” Maybe I’ll take 20 pictures of myself in my Registry shirt in various places...That might involve some traveling, but it is a sacrifice I am willing to make!

Any other suggestions out there?